You Are Not a Subject
Today your daily lived experience goes unrecorded. Cureledger makes you contributor, owner, and beneficiary simultaneously.
Today, if you have an ultra-rare disease, your options are: enroll in a trial you may never qualify for, donate samples to a biobank you will never hear from again, or wait. In all three cases, your daily lived experience, the richest dataset about your disease, goes unrecorded and unused.
Cureledger inverts this. Every day you log symptoms, track what you eat, review the products that help you function, you are building the natural history study that your disease never had.
- Contributor: Your daily data builds the corpus your disease never had.
- Owner: Your data stays yours. It travels with you. You can withdraw it at any time.
- Beneficiary: When a researcher or AI model surfaces a pattern relevant to your genotype, you are the first to know.
You are not a subject. You are not a data point someone else profits from.