Organic Acid DisordersNewborn ScreeningRUSP

Beta-Ketothiolase Deficiency

BKT

Beta-ketothiolase (mitochondrial acetoacetyl-CoA thiolase) deficiency disrupts isoleucine and ketone body metabolism, leading to ketoacidosis during fasting or illness. Treatment emphasizes avoidance of prolonged fasting, illness plans, and sometimes dietary adjustment. It is very rare but included on the RUSP for early detection.

Prevalence
Very rare
Inheritance
Autosomal recessive
Screened at Birth
Yes
On RUSP
Yes (Recommended Uniform Screening Panel)

About This Data

This disorder is part of the Cureledger rare disease data corpus. We are building privacy-preserving natural history datasets and advocacy tools for rare disease communities. Data is maintained by clinical advisors and the patient community.