Other Newborn ScreeningNewborn ScreeningRUSP

Spinal Muscular Atrophy

SMA

SMA is a motor neuron disease caused by SMN1 deletion or mutation, leading to progressive weakness and respiratory compromise in untreated severe types. Disease-modifying therapies including gene replacement have transformed prognosis when delivered presymptomatically. Newborn screening supports treatment before motor neuron loss advances.

Prevalence
Approximately 1 in 11,000
Inheritance
Autosomal recessive
Screened at Birth
Yes
On RUSP
Yes (Recommended Uniform Screening Panel)

About This Data

This disorder is part of the Cureledger rare disease data corpus. We are building privacy-preserving natural history datasets and advocacy tools for rare disease communities. Data is maintained by clinical advisors and the patient community.